We had a rough weekend. Went out to Long Island to do so we shopping and stayed late so we spent the night over my brother in law's house. Madison had 3 seizures that night. she's never had that many in such a short period of time.
At first i thought I had overdressed her and she overheated again. But after the second seizure we knew something was wrong.
Problem is we still don't know what is wrong. She has been very tired and lethargic for the past three days. She can barely walk that;s how weak she is and she's very needy.
I love the fact that snuggling makes her feel better but I don't have my hands free for a minute. My house is a disaster. But then that's nothing new, anyway.
My lesson this week...something i have had suspicions for a while now.
Doctors don't know much more than we do. I do wonder why they spend all that time i medical school paying the big bucks so they can add MD to their name.
Apparently it makes them feel all mighty but the truth is they are still human.
No offense to doctors I do like most of my doctors. But when it comes to my little girl they can't give me any answers and that drives me crazy. We've been talking to the neurologist's nurse and it's all a guessing game. The most they can do is order another EEG. I don't think Madison will appreciate being glued to a thousand wires for the 5th time so that they can tell me that everything is they it is supposed to be. Getting the glue out of her hair isn't that much fun either.
Meanwhile we saw her pediatrician yesterday and according to him she is the healthiest child alive. He did tell me she has two molars coming in. Do you think I didn't now that?
Poor child has been in pain for a couple of days now, all drugged up on Tylenol and Mortrin so she can sleep.
I am going to try some accupuncture and acutonics for her. The lady may not have an MD in her title but I am hoping she might have some more insightfulness and healing wisdom.
Or who knows it may just be another lesson learned.
E
1 comment:
I can only imagine the level of frustration you must be feeling. But it sounds like you are diligent in your quest for answers and best care for your daughter and abundant in your love for her. Sending my good thoughts and prayers your way. Stay strong dear friends...
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