Friday, September 26, 2008

and it keeps on going

it actually never stops.
Madison 's been having a rough couple of days.
After her Seizure on Wednesday the neuro upped her dose of Trileptal to 3cc twice a day.
I was expecting her to be grumpy and throw up but she was actually doing pretty well.
Until late last night when she threw up while asleep- that was already scary since it was only luck that we were in the room with her. The thought that she could have choked still bugs me. I will now definitely have trouble leaving her alone. Poor thing had pureed veggies coming out through her nose.
Fortunately daddy always knows how to make her feel better so they took anice hot bath together and she felt better.
She threw up once more but was obviously doing better. The question was whether to give her another full dose of Trileptal. The doctor said yes, but we decided on giving her less and then giving it to her again earlier than usual.
She actually slept better than she had in days, woke up around 5 am and we gave her 2cc ( the dose remained the same but we'll be giving ti her 3 times a day now instead of 2)
At 7:16 I woke up from her jerky movements. She was having another seizure- full body and face. We gave Diastat right away and she stopped seizing at 7:24.
she has been out of it all morning and gets tired very quickly but is recovering pretty well.
She learned to clap her hands this week so whenever she wants to make me happy she claps her hands and smiles at me.
She is such a strong little girl. The seizures and the tons of medications never make her want to stop moving and playing and be around people.
She is my sunshine


E

1 comment:

Jen said...

Hang in there!!! Sending lots of love, hugs & belly kisses from the West Coast! XO