Thursday, September 25, 2008

A new one...

We had our first seizure while we were outside yesterday. I've been fearing this day would come and like everything inevitable it did.
I was walking down the street arguing on the phone with Daddy when I noticed that she was staring at me, which is not like her. Sitting in the stroller her head was turned up and back toward me, as if asking for my attention. Her body was still, there were no convulsions although he right arm was rigid, holding on the water bottle strap. The only sign that was having a seizure was that she was blinking rhythmically and not responding to me calling her name.
Of course I freaked out and asked Jeff to bike over. Pushed the stroller to the side of a building, lied her down on her right side and undressed her to give her the diastat. I didn't know how long she had been seizing and certainly wasn't going to wait another 5 min.
I soon as I pulled out the diastat I saw the blinking was slowing down and the seizure stopped. I am pretty sure it stopped on its own - the diastat never wrks so fast.
Of course she was a drunken sailor for the rest of the night but didn't want to go to sleep right away. Finally around 8 she passed out. Until about 12:30 when she decided it's time to play- mommy was already exhausted so daddy took her in the other room to tire her out as well. She was restless again for the rest of the night. I believe that the Trileptal is giving her nightmares. Although some people say it actually gave them night terrors. In either case our family is sleep deprived again. She's been sleeping now since about 8:30 and I just woke up.

We love her so much.

E

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