Monday, September 29, 2008

Doing better

Madison is doing better but still not completely herself.
Her eyes are glazed and sometimes she looks like a drunken sailor. She is much grumpier than usual and gets tired very quickly. Jeff and I think she is getting chubbier which is very possibly a side effect from the medication. It's funny they don't know when and whether the medications work, but regardless the side effects are there.
We are starting to think that is not the right medication for her. But what is? Every medication will have its side effects some better some worse.
She has a fourth tooth coming- which is another reason why she hasn't been feeling all that well. and for all we know the pain or a slight fever we didn't detect could have triggered the seizures last week.
She is enjoying exploring new foods. She has already had a french fry and some mashed potatoes. She really enjoyed her first bagel ( picture to come).
I feel lost. I hate seeing her like that. I am not sure what to do because there is nothing I can do. I keep thinking how her life is going to be- what are the things she wont be able to do, how is going to be different, how is she going to handle it.
At this point I just want her to be happy. I want to see my little girl giggle and laugh like she used to be. That's the only thing I can try to do- make sure she has the right attitude and is happy with who she is.

E

1 comment:

Jen said...

I can't begin to imagine what this feels like. I marvel at your strength and devotion. Try not to worry so much, Maddie is made up of your and Jeff's DNA and given that combination, this little girl will accomplish EVERYTHING she sets her mind to do.